This video looks at some of the ways that my life is affected by severe Myalgic Encephalomyelitis.
(None of them involving mere 'fatigue'!)
M.E. is a distinct organic neurological disease which occurs in epidemic and sporadic forms. M.E. can be extremely disabling; 25% of people with M.E. are severely affected and wheelchair-bound, house-bound an...
Myalgic Encephalomyelitis (M.E.) is a debilitating acquired neurological disease which has been recognised by the World Health Organisation (WHO) since 1969 as a distinct organic neurological disorder with the code G.93.3.
Myalgic Encephalomyelitis symptoms are manifested by virtually all bodily systems including: cognitive, cardiac, cardiovascul...
A video I made about what it feels like to suffer from M.E... CFS PVFS IDS
This video explains some of the reasons why everyone with Myalgic Encephalomyelitis needs a computer (with access to the internet).
These comments would all no doubt apply equally to people with comparable illnesses to M.E., both politically and medically.
a. Medically: Where a large percentage of patients are completely (or for significant perio...
Many of the articles on Myalgic Encephalomyelitis (M.E.) in the mainstream media (and even some of the medical texts on the illness) unequivocally proclaim that not only are there no tests which can be utilised to help confirm a M.E. diagnosis, but that despite extensive testing no objective or quantifiable abnormalities have ever been found in any...
a video about M.E. set to the song "Sadness" by Enigma
A brief description of some basic facts about M.E. and my experience with having M.E. for the last 13 years.
For more information on all aspects of M.E., and for transcripts and references, see:
http://www.ahummingbirdsguide.com/whatisme.htm
Some brief comments on what it feels like to get M.E.
This video also highlights the importance of avoiding overexertion if you have M.E.
For more information on all aspects of M.E., and for transcripts and references, see:
http://www.ahummingbirdsguide.com/whatisme.htm
Ciaran Farrell explains how the World Health Organisation have classified Myalgic Encephalomyelitis (M.E.) and why he believes that it should not be confused with Chronic Fatigue Syndrome.
A short documentary piece about a girl who lives with severe CFS/ME (chronic fatigue syndrome/myalgic encephalomyelitis) confined to her bed. Found on the Invest in ME website (I think). Note that in the worst cases CFS/ME can get so severe that the person is essentially paralyzed, has to be tube-fed, cannot speak and cannot even tolerate any light...
From a series of segments on UK television about Myalgic Encephalomyelitis.
This focuses on the late M.E. sufferer, Sophia Mirza
The illness Myalgic Encephalomyelitis is constantly dismissed by the Medical Community. Dr. Durval Costa's proof is presented in this video. I hope M.E. patient Jacky Maclin, Dr. Macintire, Dr. Durval Costa don't mind me doing this but the public and medical community need educating.
A video about the severe disablity in Myalgic Encephalomyelitis
A clip on Norwegian television about a family where all 3 children have Myalgic Encephalomyelitis.
Young Hearts is a book of poetry written by children and young people with ME. The Young ME Sufferers Trust (Tymes Trust) published this book in memory of Jade Louise Scarrott. Novemeber the 29th is young hearts day and this video was created to raise awareness of Myalgic Encephalomyelitis particularly at this time. Tymes trust is a national charit...
Ciaran Farrell gives his views on a meeting at the House of Commons about Myalgic Encephalomyelitis. Shot opposite the HoC an hour after the meeting ended.
Myalgic Encephalomyelitis featured on UK television.
Features a young severelly ill sufferer, Suzy Tayler.
A clip on Myalgic Encephalomyelitis that appeared on Australian television during Awareness Week, May 2007.
Features
21 year old patient, Helen James.
31 year old patient Jodi Bassett (who runs the website, A Hummingbirds Guide to M.E.)
Sydney physician Dr. Richard Schloeffel, who has been diagnosing, manageing and treating M.E. patients si...
Part 1 of 10: Professor Malcolm Hooper talks here primarily about the physical nature of Myalgic Encephalomyelitis ( ME ), but also talks about Multiple Chemical Sensitivity ( MCS ), Gulf War Syndrome ( GWS ), and Fibromyalgia ( FM ) as real physical illnesses too.
Background information:
The original copyright-free DVD of this title was created...
This video explains why every diagnosis of 'CFS' based on any of the CFS definitions is ALWAYS a misdiagnosis and why the bogus disease category of 'CFS' must be abandoned.
For the benefit of all of the patient groups involved, doctors must return to the age-old medical principals of correct diagnosis (a) careful history, (b) detailed physical exa...
Phil Parker (creator of the Lightning Process) talks to Carly, one month after learning LP to clear her ME/CFS (Myalgic encephalomyelitis or Chronic Fatigue Syndrome.)
LP homepage:
http://lightningprocess.com
My website, with lots more info:
http://lightningprocess.googlepages.com
Burn baby burn!
The medical profession in the UK is being told to treat patients diagnosed with Myalgic Encephalomyelitis (a.k.a. Chronic Fatigue Syndrome - as the medical profession has been told by those influential enough to call the shots to refer to it as) with psychiatric treatments *despite* growing evidence that M.E. is a physiological illn...
Phil Parker (creator of the Lightning Process) talks to Austin Healey, who's wife learned LP to clear her ME/CFS (Myalgic encephalomyelitis or Chronic Fatigue Syndrome.)
LP homepage:
http://lightningprocess.com
My website, with lots more info:
http://lightningprocess.googlepages.com
Part 2 of 10: Professor Malcolm Hooper talks here primarily about the physical nature of Myalgic Encephalomyelitis ( ME ), but also talks about Multiple Chemical Sensitivity ( MCS ), Gulf War Syndrome ( GWS ), and Fibromyalgia ( FM ) as real physical illnesses too.
Background information:
The original copyright-free DVD of this title was created...
Part 3 of 10: Professor Malcolm Hooper talks here primarily about the physical nature of Myalgic Encephalomyelitis ( ME ), but also talks about Multiple Chemical Sensitivity ( MCS ), Gulf War Syndrome ( GWS ), and Fibromyalgia ( FM ) as real physical illnesses too.
Backgroud information:
The original copyright-free DVD of this title was created ...
Part 4 of 10: Professor Malcolm Hooper talks here primarily about the physical nature of Myalgic Encephalomyelitis ( ME ), but also talks about Multiple Chemical Sensitivity ( MCS ), Gulf War Syndrome ( GWS ), and Fibromyalgia ( FM ) as real physical illnesses too.
Background information:
The original copyright-free DVD of this title was created...
Phil Parker (creator of the Lightning Process) talks to a group who are learning LP to clear her ME/CFS (Myalgic encephalomyelitis or Chronic Fatigue Syndrome.)
LP homepage:
http://lightningprocess.com
My website, with lots more info:
http://lightningprocess.googlepages.com
Phil Parker (creator of the Lightning Process) talks to Debbie, who is learning LP to clear her ME/CFS (Myalgic encephalomyelitis or Chronic Fatigue Syndrome.)
LP homepage:
http://lightningprocess.com
My website, with lots more info:
http://lightningprocess.googlepages.com
Part 7 of 10: Professor Malcolm Hooper talks here primarily about the physical nature of Myalgic Encephalomyelitis ( ME ), but also talks about Multiple Chemical Sensitivity ( MCS ), Gulf War Syndrome ( GWS ), and Fibromyalgia ( FM ) as real physical illnesses too.
Background information:
The original copyright-free DVD of this title was created...
Part 6 of 10: Professor Malcolm Hooper talks here primarily about the physical nature of Myalgic Encephalomyelitis ( ME ), but also talks about Multiple Chemical Sensitivity ( MCS ), Gulf War Syndrome ( GWS ), and Fibromyalgia ( FM ) as real physical illnesses too.
Background information:
The original copyright-free DVD of this title was created...